ME & Long Covid community - #ThereForME wants to hear from you! We're collecting ideas for a song, book, poem, film or piece of art that would help people understand what it's like to have ME or Long Covid. FWIW a few on mine in the 🧵 below... https://t.co/8Bo1M9CPkQ
For me it's always been about music. Despite now being unable to listen, James has always been a music nerd. One of my strongest memories of falling in love with him was watching him play 'Don't Think Twice' by Bob Dylan on the guitar 😍 Here's 5 from me to get us started...
#1 'The Good Life' by Weezer For some reason, this has always been my ME/Long Covid song. "It's been a year or two since I was out on the floor" "It's time I got back to the good life" It's the one I always think about when it gets tough. https://t.co/hdmIZCN0AU
#2 I'm going to out myself as a shameless Swiftie here - but 'This is me trying' by Taylor Swift was one I listened to a lot when I was sick. "I had the shiniest wheels but now they're rusting." "I just wanted you to know that this is me trying." https://t.co/SLD6T9AfdP
#3 When I messaged James to say we were starting our #ThereForME campaign he sent a message back saying he had a campaign song for me. Don't You (Forget about Me) by Simple Minds. I believe this is what he had in mind: "Don't you forget about ME", https://t.co/HOz3Am1x5V
#4 James is a diehard Beatles fan - always has been. Once he told me that when he can't do anything else he runs through Beatles albums in his head. This one makes me think of him. Golden Slumbers by The Beatles "Smiles awake you when you rise" https://t.co/Q5ZpmzmLYz
#5 A sad one - but this came on the radio recently when I was driving and this line made me cry. "I'll dream each night of some version of you that I might not have, but I did not lose." Stick Season by Noah Kahan https://t.co/xSGHpgJilR
So there's my top five. We want to hear from you. #ME and #LongCovid can be so hard to describe - we want to find ways to help the world understand. Share your ideas here 👇 https://t.co/M32d8HB0Jb
P.S. This is our first try at gathering community voices for #ThereForME - we want to do more of this! Let us know if there's anything we can do to make it more accessible. This is very much a trial run.